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ian734


ian's bowel cancer blog

27th March 2006 -

note to new readers - you can use the calendar on the left to find previous entries

a rough guide to entries:

                • March 2006; diagnosis, hospital, intensive care, home again
                • April; life with an ileostomy (including the messy bits)
                • May; start of chemotherapy
                • June: sunshine and showers
                • July: end of chemo?
                • August: halcyon days - calm before the storm
                • September: a testing time
                • October: liver surgery
                • November: R and R
                • December: one year on
                • January 2007: hopeful new year
                • February: life returns to some sort of normality ....
                • March: ... or does it?
                • April: the bowel and liver are scanned ....
                • May: .. and are 'clear'
                • June: the party season
                • July: bag-free
                • September: life returns to some sort of normality - part 2
                • December; that's all folks ....
Counting the Bags

Counting the Bags


June 20th 2007


Twelve to be precise – at the  current rate of one a day.  Bag-off day is July 3rd.  If I only change them every other day, would it come any sooner?

I’ve waited 18 months for this moment.  Now - a mix of relief, joy and a little apprehension.  Will the old plumbing still work?  New routines to learn.  Potty training at my age?

I took some photos.  Nothing flashy - just a side view, a top view and a full-frontal.  I sat on the edge of the bed, the camera on a tripod about 2 feet away and fired the shutter with a remote control.  Not for the family album or the mantelpiece, but to remind me in years to come of what the stoma looked like.  I know I’ll forget the pain, the discomfort, the inconvenience - but I don’t want to forget what I’ve lived through.  Or rather – what we’ve lived through.  Annie’s had to deal with this too.

I shall also miss my stoma make-overs with the Bag-Lady.  I wonder if I can just turn up at her clinic and get her to shave my stomach – for old time’s sake.  Nah.

It probably sounds trite – but I have learnt a lot from this experience.  As well as learning something about the mechanics of the human body, I’m less squeamish than I was and I’ve pushed myself beyond what was my original comfort zone.  Life will never be the same again – thank goodness. 

Looking at my stoma – which the Bag-Lady still describes as ‘beautiful' – and when it behaves I can see what she means (a bit) - I realise I share something in common with Guy Fawkes.  We’ve both seen something that fortunately not many people get to see - our insides – luckily I’m here to tell the tale.







Cath made this comment,
At long last, here comes the corner that you have been wanting to turn for so long. I am soooo pleased for you & root for you all the way - as if my wishing you well would help? Keep us posted, good luck:)
comment added :: 20th June 2007, 18:29 GMT
JJ made this comment,
Your first line reminded me of the way a parent describes waiting for an event to a child- "3 more sleeps to Xmas." 12 days to a big change in your life, and one filled with a degree of unpredicatability. My best wishes go with you. JJ
comment added :: 22nd June 2007, 11:43 GMT
jj made this comment,
You said you didnt want to forget, and yet it almost seems "obvious" that we might want to forget sometyhing so unpleasant and frightening as these times we are going thru'..... so why remember?? WHY do I want to rememeber?? So I am not complacant? I took photos,I think partly for others and partly for myself. So that in the future, when i might have forgotten how things were, how bad they were, I can look back and see i am in a better place ..(Or so I hoped!) My reason feels a little evanescent, I can't seem to quite grasp it. If this is so aweful, WHY do I seem to be so compelled to not forget it
comment added :: 25th June 2007, 06:48 GMT